Weekly Link Round-Up: ALS Merry & Bright project, 3 Thoughts About Holiday Self-Care For Caregivers, and 8 Tips for Surviving the Holidays With Parkinson’s Disease.

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ALS:

ALS Awareness Project Led by an ALS Patient

The END ALS Association

The END ALS Association in Tokyo Japan launched its Merry & Bright project on December 24th. The objective of the project was to enable an ALS patient and founder of the association who has lost all movement and almost all means of communication to share his Christmas spirit with his loved ones using his brain waves to light up different Christmas lights. The founder and his friends connected his mindwave headband to some Christmas lights that light up based on his brain waves. 

https://markets.businessinsider.com/news/stocks/als-awareness-project-led-by-an-als-patient-1028783801

Alzheimers & Dementia:

How to navigate the holidays with family members living with Alzheimer’s, Dementia

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This article shares some of the information the Alzheimer’s Association has for approaching and celebrating with those who have Alzheimer’s or Dementia. These include involving them in safe and manageable holiday preparation activities that they enjoy. However, make sure to avoid using artificial fruits and vegetables as decorations because a person living with dementia may confuse them for real food. Blinking lights also may confuse older adults. Another bit of advice is to maintain the person’s normal routine as much as possible and make sure holiday preparations don’t become too disruptive or confusing. Finally, build on traditions and memories. You can keep up traditions or even try new traditions that may be less stressful for them. 

Read More: https://www.localmemphis.com/news/local-health-alert/how-to-navigate-the-holidays-with-family-members-living-with-alzheimers-dementia/

Caregiving:

3 Thoughts About Holiday Self-Care For Caregivers

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This article discusses how important self-care is for caregivers and gives a few basic tips to better take care of yourself. The holidays for a caregiver can be stressful with all of the added activities with family. Caregivers can only provide their best care when they are at their best. The first tip is to make sure they get enough sleep each night. It isn’t just important for your physical health but also your mental health, relieving stress and anxiety. The second tip is to eat a balanced diet. Though it may not always be easiest in the rushed life of a caregiver to eat a healthy meal, it is extremely important to give your body the right nutrients and fuel it needs to perform its functions. Finally, it is important to invest in your physical health. Some tasks for caregivers can be physically-intense and if you are not in good condition it can take a toll on your body. Caregivers need to take some time to work on their self-care so they can live a happy and healthy life. 

https://www.forbes.com/sites/jeffbevis/2019/12/23/3-thoughts-about-holiday-self-care-for-caregivers/#7f906edd5588

New book offers advice for caregivers of aging parents

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Debra Hallisey became the primary caregiver for her disabled mother after her father’s passing. She used her knowledge as a consultant to her new role as a caregiver. Over the years of taking care of her mother, Debra learned many lessons about what it is like to care for an older family member. The book she wrote discusses these lessons and the unwritten contract between a caregiver and a family member. Such as the expectations a family member may place on a caregiver. 

Read More: https://communitynews.org/2019/12/26/lawrence-author-gives-advice-on-how-to-take-care-of-aging-parents/

Hospice:

For more than a century, this Ohio family has visited hospice patients every Christmas morning

Image result for family visits hospice christmas

This article talks about the Jindra family which spread Christmas cheer to Cleveland hospice patients every Christmas. The tradition began in 1916 when Bill’s grandfather and a friend dressed up as Santa and visited a Cleveland hospital every Christmas morning. After the hospital closed, the family started to visit hospice patients at a local hospice house. They stop by every patient’s room to say hello, give a hug, and drop off some presents to the residence. 

Read More: https://www.kxlf.com/news/national/for-more-than-a-century-this-ohio-family-has-visited-hospice-patients-every-christmas-morning

Parkinsons:

8 Tips for Surviving the Holidays With Parkinson’s Disease

Image result for parkinson's and the holidays

This article is written by a person with Parkinson’s disease. She talks about some ways to make the holidays easier for those with the disease. The first tip is to be kind to yourself and not too hard on yourself. The second tip to shop online. This is because online shopping can be done at your own pace and avoid any challenges you may face when attempting to shop in person. The third tip is to wrap presents as you go. Make sure to pace yourself with presents and don’t be afraid to take a break if your symptoms start to act up. The fourth tip is to expect your expectations. Make sure to adjust overly complex holiday routines and replace them with ones that are better suited to you. The fifth tip is to listen to your body and pace yourself. When your symptoms are acting up make sure to take time to rest and not be angry with yourself. The sixth step is to accept any help when it is offered. This tip may be harder for some than others but you need to ask for help when you need it, including preparing for the holidays. The seventh tip is to adhere to your medication schedule. Make sure to keep up on taking your medications and not let the holidays get in the way. Finally, the eighth tip is to take breaks when you need to. These can include just smaller breaks in the middle of activities or even taking a day or two to yourself to rest and relax. 

Read More: https://www.yahoo.com/lifestyle/8-tips-surviving-holidays-parkinson-180349466.html?guccounter=1&guce_referrer=aHR0cHM6Ly93d3cuZ29vZ2xlLmNvbS8&guce_referrer_sig=AQAAAMQBcbIfA0Cvwsc6uzl_ueYTiWQLotYTVglWqAc95bPLaM4xTr8auMGGhrokWn_WDParfXJXEcc-nYxOXf8X5gKUvZFjZwQ1ep7hl0bpvwTb2_f0Zn1imUJFVU1l6TxaeSj8ws4EC7cfqv02A9HgFs6TbSOeQdz3RzLl6h-kDRd4

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